"My little FIRST BASEMAN"

Nate is really loving baseball this year. He absolutely loves being the first baseman. He said there is nothing like getting a guy out at 1st. lol Last week, we played Summiton and their boys were so much bigger than Nate. It looked like the Varsity playing Pee Wee!!!

We talked to the neurologist about him playing ball and the only condition he had was that he couldn't wear a hat. (because he doesn't sweat!) So we ordered him a visor instead. He knows when he's getting too hot and he runs off of the field for someone to wet him down. I really hate that he has to deal with this at such a young age. But his doctor seems to think that changing his medicine would do more harm than good. So for now He is doing a wonderful job dealing it. He amazes me everytime he steps out on the baseball field. He has come so far since the diagnosis last summer!! Please continue to pray for him!!

Spring Break 2010

Matt took off a couple of days this week and we went to Gatlinburg. We left early Monday morning and came back Wednesday night. It was a short but fun trip and I think the boys had a blast. Here are a few pics:

The boys LOVED the snow!!

It's Baseball Time Again!!!!

Its that time again!!! Since Nate is doing so much better, and after discussing it with Dr. Fequiere we have decided to let him play baseball again. He has been begging to play since they gave out the notes at school. He went back to the doctor a few weeks ago and he is doing great. We still have weekly migraines but we are learning to deal with them.

"Gotta Have His Boots"

Every morning when Nikolas wakes up, the first thing he looks for is his boots. If you will notice, they are a little big. They were Nate's Croc boots and Nikolas found them in his closet and FELL IN LOVE with them, especially since they were his bubby's... He wants to wear them all the time!! With socks, without socks, with pants.................."WITHOUT PANTS"

"Soooooooooooooooo Much Better"

Nate is doing wonderful. He loves first grade and absolutely loves his teacher, Mrs. McCown. He has been sleeping through the night since school started. He has also been sleeping in his bed. We went for the MRI about 3 weeks ago and it was NORMAL. Thank You LORD. He still has the epilepsy but there is no tumor causing it. Which means that it can be treated with medication. He is still taking Topamax, they have increased it to 75 mg daily. One in the am and 2 in the pm. We go back to Dr. Dabbs next week and to Childrens in a couple of weeks to meet with a neurologist and for an over-night EEG to make sure the meds are working like they want them to. He has NOT had any seizures that we know of in weeks. Thank you all for your prayers. They are greatly appreciated. We still need them.

"Not So Great"

Nate started out doing great on his medicine until....... they changed it to 2 a day. The first day, he laid in bed all day. We couldn't get him up. He said that he just felt like it was a lazy day and he didn't feel like getting up. The second day, he tried to do the same thing but Matt and I decided to get him out of the house and take him to the IMAX to see Transformers 2. That was great until that night. I guess it was too much excitement and he had 2 seizures during the night. So, he slept all day the next day. This week has been terrible. He is sooooo scared of EVERYTHING and I do mean EVERYTHING. He will not even go to the bathroom by himself. So, that means Mommy can't go by herself either. I find myself getting aggravated at him a lot, but I just have to keep telling myself "He can't help it" I just really wish he could be his old self. Before he was so mischievous. Now, he's a couch potato. It amazes me that one day everything is fine and the next, your whole world and way of living is turned up side down. The fits that the doctor warned us about has started. He has moment where he gets sooooo upset about the smallest of things. One minute he's fine and the next he has these rages of anger. And I think he has started to realize it too. Tonight he got upset and started to scream and stomp around and he looked at me and said, "Mommy just hold me down". What do I do? It is so hard. I am SCARED TO DEATH to send him to school in 3 weeks. He starts to school on the 11th and then the 13th he goes to Children's Hospital for more tests. Keep your fingers crossed that when we go to Children's we will get answers.


NIKOLAS: is doing great. I haven't even mentioned him in a while. (I know, I'm a bad Mom) He is 19 months old and the last few day he has used to potty more times than his diaper. He will run through the house yelling "Potty Mommy" It is so cute and sad at the same time. He is sooo smart. My goal is to have him completely out of diapers by his 2nd birthday. And right now his big thing is Nate's Nintendo DS. He really thinks he's playing the games and he cries for it when Nate has it. And he cries to go and see my Mom and Dad every morning. I forgot my camera at my Moms but as soon as I get it back I will post recent pictures of him and Nate.

BAD DAY (for Mommy)

Since finding out what was wrong with Nate. He has been so excited to start taking his new medicine. When Dr. Dabbs was telling us about the Topamax he said, "I am going to prescribe him the Topamax Sprinkles, they are capsules that you can break open and sprinkle on ice cream." Well, I don't think he quite had Nate's attention until the moment he said ICE-CREAM!!! After that, He was ALL EARS

After we left the doctors office we went to absolutely every pharmacy in Jasper and NO ONE had it and said it would be next week until they could get it. SO we came home and I called around and still couldn't find it. Luckily Matt's aunt works at the Son's Pharmacy in Parrish and I called her and she said they would have it the next day. I went to pick it up and guess what? THEY DON'T ACCEPT OUR INSURANCE!!!!!!! The pharmacist said, "You could just pay for if you would like." I said, "Sure, how much is it?" I have a flex card with a $1500 dollar limit so I thought hey, a hundred dollars maybe even two won't be so bad. She said "SEVEN-HUNDRED EIGHT -FOUR DOLLARS." I could have died. I was SO upset... So I took the prescription back and went home. Matt's mom does a ladies nails from the Jasper store so she called her. I called them and gave them all of Nate's information and it went right through. So, they sent someone to the Parrish store to pick it up. She called me and said, "Its here run up here, give me the prescription and I will run it through and you will be in and out in no time." So I did and when I got there she was gone and they told me it would be an hour and a half wait. So I waited..... and waited ..... and waited..... Finally, they called me up there and I gave them my flex card and GUESS WHAT????? They don't accept them!!!! I mean it was only $41.30. But all I had was my flex card. No wallet. I forgot it at home. I was devastated. I ran to the car, got my cell phone and called Matt I was crying and SO upset I could barely talk. He said, "Baby, just come on home its 7:30 and they close in 15 minutes and I don't have time to get there. He will be okay tonight and we will get it tomorrow. CALM DOWN" Well, I turned around to look to see if there were any cars coming so I could leave and guess who drove up? My MOM AND DAD!!!! He had been to Urgent Care and was stopping by to get water. I don't think I had ever been so happy to see anyone. So I jumped out of the car and ran over there and he said, "What is wrong?" So I tried to tell them, while crying, by this time I was crying because I was so glad to see them. My Dad said, "Come on, lets go and get my little buddy's sprinkles."
When I got home, Nate met me at the car because he was ready for some ice cream with SPRINKLES. So we came inside and I got it out of the bottle and he said, "WHAT? That's not sprinkles, that's medicine. Don't them crazy people know that if they would make those sprinkles different colors little kids might like them?" (these were solid white) We got so tickled at him. He decided that he would be a big boy and just swallow it because he thinks bedtime is not a good time to be eating ice cream. I couldn't believe those words just came out of his mouth. Matt checked his forehead for fever! :) and said "Did he just say that?" And he did he popped it right in and swallowed it. Just like a BIG BOY!
He has now had 2 doses and I don't know how long it should take it to really get into his system and start working but, we only got up once last night. Yay!!! And today he was layed back and easy going. He wasn't hyper at all. Matt said that when he stared taking it, He could tell a difference in the way he felt immediately. Keep your fingers crossed that he will respond to it like they are hoping.